tag:blogger.com,1999:blog-2238276534410758837.post19700573996815052..comments2023-08-29T08:17:53.986-07:00Comments on Multiple Sclerosis--the vascular connection: Blood MattersJoanhttp://www.blogger.com/profile/09439558270245339942noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-2238276534410758837.post-4124394589701321262015-10-12T09:14:29.752-07:002015-10-12T09:14:29.752-07:00Dear Saskia--sending prayers for you and your daug...Dear Saskia--sending prayers for you and your daughter. There is so much you can both do to remain healthy and hopeful. Strenghten your endothelium (the lining of your blood vessels) and do it together. http://www.ccsvi.org/index.php/helping-myself/endothelial-healthJoanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-30985543577596876592015-10-11T15:27:09.969-07:002015-10-11T15:27:09.969-07:00I too have petechiae all over my torso and upper a...I too have petechiae all over my torso and upper arms, only a few on my legs, and have had MS for around 30 years. My daughter is now going through investigation for MS, so I am hooking you up with her if she IS diagnosed. You are the shrine in the desert, slaking our thirst for real knowledge. Thank you thank you<br />Saskiahttps://www.blogger.com/profile/12077125729952139370noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-68653780364226161042015-10-11T12:13:10.501-07:002015-10-11T12:13:10.501-07:00Per CONOSCENZA, per SIMILITUDINE CON LA SLA ed SM...Per CONOSCENZA, per SIMILITUDINE CON LA SLA ed SM , Probabile potenziale patologia del Prof. Paolo Zamboni : https://www.youtube.com/watch?v=U4l34l717-w ruggierifphttps://www.blogger.com/profile/17078069090189913033noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-9010391939969233362015-10-11T09:53:58.022-07:002015-10-11T09:53:58.022-07:00Hi Suus----these spots, called petechiae, are a si...Hi Suus----these spots, called petechiae, are a sign that the lining of our blood vessels is not working. Also called "endothelial dysfunction." Here's a program I created to help my husband heal. It's beneficial for all, whether or not one has MS. http://www.ccsvi.org/index.php/helping-myself/endothelial-healthJoanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-39967479459154725602015-10-11T09:51:49.308-07:002015-10-11T09:51:49.308-07:00Thanks for the encouraging words, Bev! Yes, I wil...Thanks for the encouraging words, Bev! Yes, I will be in Vancouver next weeked, and will look forward to catching up with you and getting a big <>! Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-57810750975002846002015-10-11T06:55:32.353-07:002015-10-11T06:55:32.353-07:00Again Joan you write so clearly, making difficult ...Again Joan you write so clearly, making difficult medical reports easier to understand. You also go further by explaining why life style is profoundly important to pwMS. Your research to help Jeff has helped thousands more. I believe there are many doctors who also have been helped by your research. I/we can never thank you enough for caring about all pwMS. Your brilliance and compassion give us understanding and HOPE. now, I hope you are coming to the CNHS CONFERENCE next weekend? 💖Bev Bentleyhttps://www.blogger.com/profile/17882448325357767549noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-41364923307698363182015-10-11T06:29:50.837-07:002015-10-11T06:29:50.837-07:00Again Joan you write so clearly, making difficult ...Again Joan you write so clearly, making difficult medical reports easier to understand. You also go further by explaining why life style is profoundly important to pwMS. Your research to help Jeff has helped thousands more. I believe there are many doctors who also have been helped by your research. I/we can never thank you enough for caring about all pwMS. Your brilliance and compassion give us understanding and HOPE. now, I hope you are coming to the CNHS CONFERENCE next weekend? 💖Bev Bentleyhttps://www.blogger.com/profile/17882448325357767549noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-55535540809517013962015-10-11T01:03:43.733-07:002015-10-11T01:03:43.733-07:00Hé. .. I have got the same red spots on my belly a...Hé. .. I have got the same red spots on my belly and above there... I got MS too... though, my brother had equal spots, but not MS.... finally there's an explanation for the spots thanks<br />Suushttps://www.blogger.com/profile/14867527012968798259noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-50211941937865865832015-10-11T01:03:41.075-07:002015-10-11T01:03:41.075-07:00Hé. .. I have got the same red spots on my belly a...Hé. .. I have got the same red spots on my belly and above there... I got MS too... though, my brother had equal spots, but not MS.... finally there's an explanation for the spots thanks<br />Suushttps://www.blogger.com/profile/14867527012968798259noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-78681502888432993702015-10-11T01:03:00.493-07:002015-10-11T01:03:00.493-07:00Hé. .. I have got the same red spots on my belly a...Hé. .. I have got the same red spots on my belly and above there... I got MS too... though, my brother had equal spots, but not MS.... finally there's an explanation for the spots thanks<br />Suushttps://www.blogger.com/profile/14867527012968798259noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-36683209494283848832014-11-12T11:53:49.581-08:002014-11-12T11:53:49.581-08:00Thankyou always Joan Thankyou always Joan Lynnie Healhttps://www.blogger.com/profile/13932647784833428210noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-89363092040659114902014-05-09T18:32:48.893-07:002014-05-09T18:32:48.893-07:00 (Google Translate-English Italy) My Idea, maybe g... (Google Translate-English Italy) My Idea, maybe genius or perhaps stupid. The same red dots on the skin, you are applying for a few minutes, directly on the skin, an ovoid shape made from a large leaf of agave or Agave Americana European all green, because it contains natural cortisone that our adrenal glands but, in case of potential MS, is excessive, THEREFORE, in these cases, it would be better to go to investigate the possible super-activity of the adrenal glands, measuring and / or detecting the cortisone in circulation! ; ITALY : Mia Idea, forse geniale o forse stupida . Gli stessi puntini rossi, sulla pelle, si hanno, applicando per pochi minuti, direttamente sulla pelle, una forma ovoidale ricavata da una grande foglia di Agave Americana o agave europea tutta verde, perché contenente CORTISONE Naturale, che le nostre ghiandole surrenali producono ma, in caso di potenziale SM, in modo eccessivo, QUINDI, in questi casi, meglio sarebbe andare ad indagare sulla eventuale super attività delle ghiandole surrenali, misurando e/o rilevando il cortisone in circolazione !!ruggierifphttps://www.blogger.com/profile/17078069090189913033noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-37750931783756524352014-03-08T07:10:42.357-08:002014-03-08T07:10:42.357-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/17348230804278709521noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-57519937949484553502014-03-07T22:30:28.229-08:002014-03-07T22:30:28.229-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/17348230804278709521noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-61751527430507851832014-03-07T22:29:13.742-08:002014-03-07T22:29:13.742-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/17348230804278709521noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-4269658454117726712014-03-07T22:17:41.481-08:002014-03-07T22:17:41.481-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/17348230804278709521noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-21169845499841440292014-03-04T08:53:59.201-08:002014-03-04T08:53:59.201-08:00Hi Emily--if your spots were ITP, or idiopathic th...Hi Emily--if your spots were ITP, or idiopathic thrombocytopenic pupura--that would be something confirmed with blood tests by your doctor to make that diagnosis. He would have seen antibodies in your blood after a bad viral infection. This happens to kids after chickenpox, and decreases the number of platelets in the blood...and usually clears up on its own. ITP is different than the petechial rash on my husband's legs--his came without virus, suddenly with his MS flare and was related to hypercoagulation. Hope that helps explain the difference. Take care!Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-18033325604031531722014-03-04T08:44:55.510-08:002014-03-04T08:44:55.510-08:00Also---to Kenny and Brian--you would not be "...Also---to Kenny and Brian--you would not be "donating" your blood for others to use, per se. But you would be having blood removed, also called blood-letting (phlebotomies)--this can be hellpful, and is done in a doctor's office, as an outpatient procedure. Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-27795843707114650092014-03-04T08:39:18.005-08:002014-03-04T08:39:18.005-08:00Hi Kenny--Having high hemoglobin (or a higher than...Hi Kenny--Having high hemoglobin (or a higher than average amount of the protein that is the main part of our red blood cells, and is responsible for carrying oxygen in the body) can certainly complicate this issue with your MS. I really do not know if donating blood would effect endothelial dysfunction --but it certainly known to reduce the amount of iron in the blood itself, and could reduce oxidative stress. All good things.<br /><br />There are lifestyle factors that raise hemoglobin which you should look at, as well--don't smoke, don't take anabolic steroids, make sure to stay hydrated. All of these factors can raise your hemoglobin levles. I'm not a doctor-- the best thing to do is talk to you doctor about why this is happening for you---is it hereditary? Do you live at high altitude? Do you have heart or kidney issues? But you really need the consult of a smart physician. Do your homework, get recommendations. <br /><br />And in the meantime--do all you can to stay healthy by eating well, reducing stress, and moving. I wish you well!! Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-24193423577089887392014-03-03T23:25:27.059-08:002014-03-03T23:25:27.059-08:00Hi, Kenny, I don't think anyone with MS should...Hi, Kenny, I don't think anyone with MS should donate Blood. Nobody knows what causes MS so nobody knows what you might be donating. And we already know that some MS is misdiagnosed Lyme. And Lyme is not something you would want to donate to anybody. BrianBrian Whitehttps://www.blogger.com/profile/08202522814395619518noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-76073063192994019492014-03-03T22:54:14.945-08:002014-03-03T22:54:14.945-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/17348230804278709521noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-33853613630205647392014-03-03T22:51:53.568-08:002014-03-03T22:51:53.568-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/17348230804278709521noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-65888952291812787292014-03-03T21:14:32.524-08:002014-03-03T21:14:32.524-08:00Joan I had this as a child the doctor's said i...Joan I had this as a child the doctor's said it was Itp. This all makes sense now thank you.emilyhttps://www.blogger.com/profile/05273457595187981741noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-7775546648867909312014-03-03T17:20:49.966-08:002014-03-03T17:20:49.966-08:00Hi Laurel. Yup, those are called "petechiae&...Hi Laurel. Yup, those are called "petechiae" and are related to leaky blood vessels, also called endothelial dysfunction. Dr. Swank would tell you to watch you fat intake--stay clear of transfats and processed foods. And bossy old me wrote up a whole program for my husband, to help him heal those spots on his legs, and in his brain. He's doing great, seven years later, no MS progression. Here's the program. Hope it helps! Keep moving and stay well. Joan http://ccsvi.org/index.php/helping-myself/endothelial-healthJoanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-35315504668057607422014-03-03T15:51:44.407-08:002014-03-03T15:51:44.407-08:00All my life I have wondered what these red dots we...All my life I have wondered what these red dots were for I was alarmed when as a teenager (18) I found similiar looking red dots on my chest. I attributed it to drinking too much alcohol that week-end with my friends. Thank you so much for this article. I was diagnosed with MS at the age of 39. Had CCSVI 3 years ago; totally changed my life. I am just now considering having it done again. I have also had proplems with the veins in my right leg only. Wow..just wow<br />Anonymoushttps://www.blogger.com/profile/11090195629946860125noreply@blogger.com