tag:blogger.com,1999:blog-2238276534410758837.post5494098026088927134..comments2023-08-29T08:17:53.986-07:00Comments on Multiple Sclerosis--the vascular connection: Exciting New MS Treatment!Joanhttp://www.blogger.com/profile/09439558270245339942noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-2238276534410758837.post-28053997673549077122017-12-15T08:08:09.757-08:002017-12-15T08:08:09.757-08:00You bet, Ricardo! It was my husband's serum r...You bet, Ricardo! It was my husband's serum results at diagnosis w/MS that sent me down this vascular path (high SED rate, high Crp, high AST and ALT) You may be interested in joining the International Society for Neurovascular Disease (ISNVD), as they are doing some terrific publishing on the vascular connection to MS. https://isnvd.orgJoanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-75094919074429299662017-12-15T04:52:43.345-08:002017-12-15T04:52:43.345-08:00Thanks a bunch for your reply!
I believe more and ...Thanks a bunch for your reply!<br />I believe more and more that MS is a vascular and not autoimmune disease... Chilblains or ischemic strokes prior to disease can testify that.<br />Thanks again!riclealhttps://www.blogger.com/profile/05198753753628311378noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-51075870616878137092017-12-14T19:14:06.128-08:002017-12-14T19:14:06.128-08:00also--interesting that you mentioned that Sardinia...also--interesting that you mentioned that Sardinian study, as this is where Dr. Zamboni's venous malformation studies began in 1990. He noted venous irregularities in many there, and followed these patients. Many of these patients developed MS years later. http://journals.sagepub.com/doi/abs/10.1177/026835559000500110?journalCode=phla Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-22181498197345745462017-12-14T18:59:12.069-08:002017-12-14T18:59:12.069-08:00Hi Ricardo---There are so many variables in slowed...Hi Ricardo---There are so many variables in slowed venous flow, you are right. There could be vascular issues (valves, stenosis, hypoplasia) or bony issues from the atlas, or viruses/bacterial infections causing endothelial cell dysfunction, or lack of exercise and shear stress, or bad eating habits, or lack of UV rays....the list goes on. CCSVI venoplasty alone will not be the answer. We need to look at each individual patient and find the root cause of restricted venous flow. It will take more than a simple treatment. My husband has combined nutrition, exercise, stress reduction, sunshine exposure, in addition to his venous stenting. And this multi-modal approach has worked for him, reversing MS disease progression. We'll get there. The vascular connection to MS is real, but it is not simple, nor addressed with a pill. Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-80243755233188557532017-12-14T05:25:57.004-08:002017-12-14T05:25:57.004-08:00Hi Joan!
First of all this is my first comment and...Hi Joan!<br />First of all this is my first comment and I'd like to congratulate for your excellent research. I'm very impressed.<br />I'd like to know your opinion about the studies showing the inefficacy of the venous angioplasty (this one for example: Efficacy and Safety of Extracranial Vein Angioplasty in Multiple Sclerosis: A Randomized Clinical Trial, https://www.ncbi.nlm.nih.gov/pubmed/29150995).<br />Do you think this is because MS can have multiple origins? In the Sardinia study CCSVI was quite effective probably because in that island MS had all the same origin (venous abnormalities)?<br />I really look forward to have your opinion here!<br />Thanks in advance.<br />Ricardo<br />riclealhttps://www.blogger.com/profile/05198753753628311378noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-22568239176939836352017-11-25T13:57:48.369-08:002017-11-25T13:57:48.369-08:00Well I was going to have my ccsvi done again with ...Well I was going to have my ccsvi done again with stent this time with Dr. Salvatore in couple of weeks.<br />I guess I need to make some changes to that.vahidhttps://www.blogger.com/profile/03601811554509069204noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-87537681433322105502017-11-20T10:48:05.386-08:002017-11-20T10:48:05.386-08:00thank you Joan
thank you Joan <br />Florencehttps://www.blogger.com/profile/01479686183475838702noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-87807359151040499262017-11-18T18:01:21.333-08:002017-11-18T18:01:21.333-08:00Hi Eleanor--so sorry you did not receive benefit f...Hi Eleanor--so sorry you did not receive benefit from CCSVI treatment, and had a stroke. I'm assuming you've been tested for antiphospholipid antibody syndrome (Huges Syndrome) ? Hypercoagulation can be an issue for some diagnosed with MS. The Brave Dreams trial is only the beginning....we've just recently discovered the brain's lymphatic vessels. Hard to say CCSVI research is "over"---just because neuros want it to go away! Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-70503099748616639312017-11-18T17:40:52.815-08:002017-11-18T17:40:52.815-08:00Thank you Joan. You show us the truth easily unde...Thank you Joan. You show us the truth easily understood. Love always xoShirleyhttps://www.blogger.com/profile/14582377209411668582noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-18503422448993888422017-11-18T17:07:47.625-08:002017-11-18T17:07:47.625-08:00I'm glad I read the entire "story" ...I'm glad I read the entire "story" - I was going to make a Doctor's appointment Monday to get this new drug !!<br />CCSVI treatment didn't work for me in 2010, and a stroke in 2014 really messed up my autonomic system. Despite all that it just seems to make sense that an issue with blood flow (or lack thereof) must be a problem. Anyways, in addition to this "fun" article, so glad for your additional input on the seemingly failed Brave Dreams paper. Thank you, Eleanor Roberts.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-969954813461016182017-11-18T12:34:32.116-08:002017-11-18T12:34:32.116-08:00Yes, you have that knack of getting right to the c...Yes, you have that knack of getting right to the core of it! Love to you right back, dear friend... :-)Anonymoushttps://www.blogger.com/profile/15211476164872649938noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-35997825847707445162017-11-18T12:10:55.234-08:002017-11-18T12:10:55.234-08:00Thank you dear Joan for always keeping your chin u...Thank you dear Joan for always keeping your chin up and finding humour in everything. What a strength of character.....sure wish I had that most days. <br /><br />Christopher Alkenbrackhttps://www.blogger.com/profile/16174503550809335782noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-20967418944772270382017-11-18T11:53:34.521-08:002017-11-18T11:53:34.521-08:00I know you do Joan, profound Thanks. Exciting time...I know you do Joan, profound Thanks. Exciting times ahead if we can just hang on ...http://sherylmcdougald.wordpress.com/https://www.blogger.com/profile/07955422745322521454noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-26847045407646397132017-11-18T11:47:03.490-08:002017-11-18T11:47:03.490-08:00Joan thank you always for your honesty . Always ...Joan thank you always for your honesty . Always speak out . Lynnie Healhttps://www.blogger.com/profile/13932647784833428210noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-31850863302479030202017-11-18T11:34:53.919-08:002017-11-18T11:34:53.919-08:00I care for you, Sheryl. And we all care for each ...I care for you, Sheryl. And we all care for each other. Yes, there are many good doctors and researchers who will come to uncover the mechanistic workings of the brain's lymphatics and vasculature. Along with the ones you mention, we have Dr. Michal Schwartz, Dr. Jonathan Kipnis, Dr. Maiken Nedergaard ---all those who are asking the big questions, beyond pharmacology, and into the actual functions of cleansing and perfusion of the brain. Live your best vascularly healthy life--more ahead. Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-68178794641810111282017-11-18T11:23:54.319-08:002017-11-18T11:23:54.319-08:00Yep. But we have to keep pushing past bs pharma gr...Yep. But we have to keep pushing past bs pharma greed. I see how it is, and it still really hurts that no one will care for me (us) and we are on our own. But soon the people of integrity such as you, the Embry's, Dr. Zamboni, Dr. Wahls.. will reach the tipping point in our favour.http://sherylmcdougald.wordpress.com/https://www.blogger.com/profile/07955422745322521454noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-8627180093338096252017-11-18T11:16:29.318-08:002017-11-18T11:16:29.318-08:00you bet, Marie....can't believe it's been ...you bet, Marie....can't believe it's been 10years of obfuscation by neurologists. <br />The published research actually shows:<br />1. CCSVI exists <br />2. CCSVI impairs venous flow <br />3. Treating CCSVI improves fluid dynamics and stops lesions.<br />4. Neurologists prefer to ignore the facts, and protect their money and turf.<br />love to you. <br /><br />Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-45988090828553672832017-11-18T10:29:43.461-08:002017-11-18T10:29:43.461-08:00You are so right, Joan. Thank you for writing this...You are so right, Joan. Thank you for writing this. Anonymoushttps://www.blogger.com/profile/15211476164872649938noreply@blogger.com