tag:blogger.com,1999:blog-2238276534410758837.post7488765076374554743..comments2023-08-29T08:17:53.986-07:00Comments on Multiple Sclerosis--the vascular connection: Ocrevus and "wrapping up MS"Joanhttp://www.blogger.com/profile/09439558270245339942noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2238276534410758837.post-36082704851331196202018-02-01T18:17:30.468-08:002018-02-01T18:17:30.468-08:00Hi Julissa--thank you for your comment. I'm g...Hi Julissa--thank you for your comment. I'm glad you found this information helpful. I don't really do e-mail conversations regarding this blog----but if you have specific questions about the research covered here, you can always leave them in the comments, and I do my best to reply in a timely manner. I always remind readers that I'm not a doctor---I just have a curiosity for this research. Be well. Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-34084570617657763632018-01-30T12:14:14.963-08:002018-01-30T12:14:14.963-08:00AFTER looking for articles about CD20 protein, hea...AFTER looking for articles about CD20 protein, hearing both versions, being a Young Ms patient myself And reading this article..this may be Joan, the best and most comprehensive information can we email because as others have said i think youre on t something here too especiallly about the blood brain barrierAnonymoushttps://www.blogger.com/profile/01225375546455343175noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-77621118291286174312017-01-07T14:32:45.067-08:002017-01-07T14:32:45.067-08:00Thank you for this review. I think you have someth...Thank you for this review. I think you have something hereyaelgrehttps://www.blogger.com/profile/15955058653311309185noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-62067888994163918902016-12-29T19:55:48.386-08:002016-12-29T19:55:48.386-08:00oh, and vahid, have you tried LDN low dose naltrex...oh, and vahid, have you tried LDN low dose naltrexone to help with symptom relief? i've used it...many of my friends with ms use it and get good results. along with a paleo diet and mega vitamin d, ldn might help.<br />Anonymoushttps://www.blogger.com/profile/02574877336771559331noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-1532864354483415842016-12-29T19:53:41.949-08:002016-12-29T19:53:41.949-08:00vahid, i'm a believer in ccsvi and in stem cel...vahid, i'm a believer in ccsvi and in stem cell replacement. have you looked into dr. burt of chicago? i have ms but was too old for the research study he's starting. my friend however did get into the study.Anonymoushttps://www.blogger.com/profile/02574877336771559331noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-38998042481739683832016-12-29T03:50:35.197-08:002016-12-29T03:50:35.197-08:00Florence Guy wrote this to me which is true...Florence Guy wrote this to me which is true words. Disclosures from Gavin Giovannoni (below), one of the authors of the study. He goes on social media and is in the press promoting Ocrelizumab. The pharmaceutical industry funded this research then hired individuals with numerous conflicts of interests to do it. I'm a little skeptical. Ok, ok I'm more than a little skeptical, I think motivated reasoning guides them. They want to promote the drug. They don't want to get or give an accurate picture of reality.Lynnie Healhttps://www.blogger.com/profile/13932647784833428210noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-59339500353928948862016-12-28T15:35:19.251-08:002016-12-28T15:35:19.251-08:00Hi Vahid--I'm sorry your MS is giving you wors...Hi Vahid--I'm sorry your MS is giving you worsening issues. You're doing well using exercise and Swank. Make sure your vitamin D levels are good. It's tough during the winter. Cold air and lack of sunshine can make blood flow slower and nitric oxide less available. Hang in there. Additional venous treatments may or may not be helpful--it really depends on your unique situation. I hope you find more answers and that there will be better options for you in the future. Take care. Joanhttps://www.blogger.com/profile/09439558270245339942noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-71281880619772573522016-12-28T14:12:58.178-08:002016-12-28T14:12:58.178-08:00Hi Thank you for all the info and research Joan. s...Hi Thank you for all the info and research Joan. since every drug has it's own side effects and may or may not help as well as CCSVI , I am totally confused on what to do , currently after having MS for over 35 years being on two different drugs for 12 years and now going without any drugs for 7 years, and only doing YMCA and swank diet but struggling to move everyday .<br />I was thinking of going for another ccsvi + stent , I know that may or may not help since stent could be a cause for blockage too. But I was thinking that could be a closure on ccsvi perhaps then I can concentrate on this is how life going to be and just deal with it and it's not going to get any better. at least for next 5 years or so.vahidhttps://www.blogger.com/profile/03601811554509069204noreply@blogger.comtag:blogger.com,1999:blog-2238276534410758837.post-2504446969138755252016-07-31T18:15:31.338-07:002016-07-31T18:15:31.338-07:00Thank you always from UK for doing so much wor...Thank you always from UK for doing so much work and research into MS truths Joan .Lynnie Healhttps://www.blogger.com/profile/13932647784833428210noreply@blogger.com