UPDATE 2018---Jeff remains MS progression free eleven years after diagnosis, with no new lesions, and a continuation of healing.
Our family has some great news to share! Jeff's new MRI shows a continued healing of his brain and spine. His cervical lesions are now "less prominent" than they were on his last MRI in 2012, an indication of remyelination. He has no new white matter lesions, and, most importantly, his gray matter structures are all healthy and normal, with no signs of atrophy. This MRI shows actual healing---not placebo---when compared to Jeff's very first MRI in 2007, which showed gray matter atrophy and enhancing lesions on the spine and brain.
It has been 8 1/2 years since Jeff's MS diagnosis, and 6 years since his venoplasty treatment at Stanford. Jeff remains physically and mentally active, and has stayed on the Endothelial Health Program. He has had no MS progression. We do not take Jeff's health for granted. We are very thankful for the wonderful CCSVI community and researchers, and we consider this blessing of good health something which we are responsible to share. We want to stay involved in the neurovascular community at large, because we remain convinced that it is essential to look at the brain's blood, cerebrospinal fluid and lymphatic flow when evaluating treatments.
MS is an inflammatory disease in which neurodegeneration and gray matter loss is the only correlate to disease progression. The autoimmune hypothesis remains unproven. All of the current drug treatments---now, a $20 billion a year industry--- are based on the EAE mouse model of MS, which relies on stopping immune activation in the central nervous system, and uses white matter lesions to measure "success" of a disease modifying med. None of these meds have been shown to stop MS disease progression.
New research on the brain continues to come in, and points to the brain's reliance on the major draining veins to maintain gray matter structures. MS specialists remain intransigent; by refusing to consider how slowed venous flow and endothelial dysfunction might be affecting their patients' brain health.
Yet the evidence continues. Outspoken advocates who have treated their own MS with cardiovascular means of diet, exercise and lifestyle changes continue to speak out and gain followers. These individuals are pointing the way to health and healing for the MS brain.
Dr. Terry Wahls http://terrywahls.com
Matt Embry http://www.mshope.com
Dr. George Jelinek http://www.overcomingmultiplesclerosis.org
Jeff Beal http://ccsvi.org/index.php/helping-myself/endothelial-health
Even though each program has specific dietary differences (paleo, anti-allergen, low fat)---it's important to notice the lifestyle measures which these programs SHARE.
1. Healthy, whole foods, with plenty of colorful organic fruits and vegetables
2. Removal of processed foods and transfats
3. Smoking cessation
4. Increased intake of Vitamin D with UV ray exposure and supplementation
5. Regular cardiovascular exercise
6. Meditation or some form of stress relief
7. Consideration of the blood, CSF and lymphatic flow to and from the brain
8. Good quality and regular sleep
9. Maintaining a healthy weight
10. Addressing microbiome health with probiotics
There are things that can be done today, to help the brain heal. Will these measures "cure" or "end" MS? None of us know that for sure. There may well be genetic factors which contribute to highly progressive MS, that cannot be completely addressed by these programs. But we now have years and years of evidence compiling---Matt Embry is out the furthest with 20 years of no disease activity, George Jelinek is at 16 years, and Terry Wahls and Jeff are at eight years.
These numbers are impressive, and they matter.
Please be encouraged (which literally means, to give heart!!!)
The heart and brain are connected, and it's possible to take care of them.
You can do it, one day at a time,
Joan and Jeff
From Rindfliesch's discovery of the central vessel in the MS lesion in 1863, to CCSVI and the CNS lymphatic discovery. 160 years of research on blood flow, CSF, lymph and perfusion of the central nervous system. Because the heart and the brain are connected.
Welcome! This blog contains research & information on lifestyle, nutrition and health for those with MS, as well as continuing information on the understanding of the endothelium and heart-brain connection. This blog is informative only--all medical decisions should be discussed with your own physicians.The posts are searchable---simply type in your topic of interest in the search box at the top left.Almost all of MS research is initiated and funded by pharmaceutical companies. This maintains the EAE mouse model and the auto-immune paradigm of MS, and continues the 20 billion dollar a year MS treatment industry. But as we learn more about slowed blood flow, gray matter atrophy, and environmental links to MS progression and disability--all things the current drugs do not address--we're discovering more about how to help those with MS.To learn how this journey began, read my first post from August, 2009. Be well! Joan
Showing posts with label George Jelinek. Show all posts
Showing posts with label George Jelinek. Show all posts
Tuesday, September 8, 2015
Wednesday, April 11, 2012
There is no miracle pill
April 11, 2012 at 12:18pm
We all know nutrition is an important part of good health and recovery in chronic illness. If some forms of MS are indeed related to the venous system, as Dr. Zamboni's and others' research indicates, it's important to live a vascular healthy lifestyle.
Medical doctors like Dr. Terry Wahls and Dr. George Jelinek have shown, through their own lifestyles and published research, the importance of diets rich in antioxidants and phytonutrients from fruits and vegetables. It helps some people with MS find stability. I believe there is no coincidence in this fact.
I wanted to write a bit about the new supplement companies coming forward with special, proprietary blends of products for MS that "enhance your DNA!!" or "provide epigenetic support!!" These products can only be purchased by a special distributor.
They all seem to all have snazzy webpages and YouTube videos hosted by toothy and tanned men in white coats. Some of them get celebrities to hawk their wares. The products all end in "ex" or sound vaguely scientific and futuristic. They claim to switch on your body's own DNA. (Here's the deal, your DNA is already in the on position. Epigenetics just means outside influences that change our DNA...stuff that isn't written in our code, but affects of genes from the outside. Your genes are changed by what you ingest and come in contact with--both the good and the bad. In other words, you control your epigenetics.)
We then read testimonials from our friends online, whose lives have been forever changed by this one product, and they sincerely want to help us. But this supplement can only be purchased from so and so, and we'd better go and meet so and so and change our lives. Oh, yeah. There's a dollar sign attached.
ALL of these new supplements contain phytonutrients. Phyto simply means plant in Greek. So, these are nutrients from plants, that's all. Nothing super special or proprietary. These supplements are very colorful. Jeff's curcumin supplement leaves my hands orange. We just had a note from the Hubbard Foundation on beets, and as Jason noted, BE CAREFUL! Beet juice stains! So does wine, which is rich in phytonutrients. Any fruit or veggie rich in these nutrients will probably stain, because they have such intense color. God made them colorful, and He made them good for us.
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