Welcome! This blog contains research & information on lifestyle, nutrition and health for those with MS, as well as continuing information on the understanding of the endothelium and heart-brain connection. This blog is informative only--all medical decisions should be discussed with your own physicians.

The posts are searchable---simply type in your topic of interest in the search box at the top left.

Almost all of MS research is initiated and funded by pharmaceutical companies. This maintains the EAE mouse model and the auto-immune paradigm of MS, and continues the 20 billion dollar a year MS treatment industry. But as we learn more about slowed blood flow, gray matter atrophy, and environmental links to MS progression and disability--all things the current drugs do not address--we're discovering more about how to help those with MS.

To learn how this journey began, read my first post from August, 2009. Be well! Joan

Showing posts with label congenital. Show all posts
Showing posts with label congenital. Show all posts

Sunday, June 26, 2011


Phlebology

June 26, 2011 at 3:08pm

Let's face it.  Phlebology, the diagnosis and treatment of venous disease, is just not as appealing as Neurology.  The word phlebology is hard to spell, hard to pronounce.  Reminiscent of phelgm, phlegmatic, other unsexy words that start with phl. 

The root of this word, phleb, is from the Latin fluere, meaning "to flow"

Truth is, phlebology is turning out to be a very, very important medical practice.  Veins, once thought to be uninvolved in disease, are turning out to be equally important as their brother arteries.  Maybe more so.

Veins take deoxygenated blood back to the heart.  If they are blocked, blood flow and hemodynamics are altered.  The influx of blood from the heart via the arteries is changed.   In the liver, in the kidneys, in the brain.  Any organ can be affected.  We think of varicose veins when we hear venous disease...again,  not sexy.  But veins run throughout the body, and if they are malformed, it can ruin our organs.

I got to meet and listen to a premiere phlebologist in Bologna in 2009.  Dr. Byung B. Lee was at the first symposium organized by Dr. Zamboni.  Dr. Lee talked about his introduction to venous disease as a liver transplant surgeon.    
Here are my notes from the conference.  Dr. Lee on venous malformations, in his own words.

Byung B. Lee- Georgetown University School of Medicine, Washington-Embryology of the venous system and origin of truncular venous malformations

Dr. Lee began as a transplant surgeon and admitted that his first liver transplant was a disaster. He learned the hard way that the vena cava is not just a single trunk, and a venous malformation was a most fearful thing, and a nightmare to a transplant surgeon. 

"We doctors have a tendency to specialize in our narrow fields, but I want to appeal to all of us to take a bird’s eye view. We need to look at the whole picture. We now understand the lower venous system, but it has taken us much too long to bring this knowledge all the way up to the neck and all the way to the junction of the superior vena cava.

Tuesday, January 26, 2010


News from Dr. Zamboni- CCSVI lesions classified as congenital

January 26, 2010 at 7:47am

Received an e-mail from Dr. Zamboni this morning-

A Consensus Conference on Venous Malformations - headed by Prof. Byung B Lee from Georgetown - and experts from 47 countries- studied the evidence and unanimously voted in favour of officially including the stenosing lesions found in CCSVI in the new Consensus document and Guidelines. Now published-

http://www.ncbi.nlm.nih.gov/pubmed/20087280?itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum&ordinalpos=1

http://www.minervamedica.it/en/journals/international-angiology/article.php?cod=R34Y2009N06A0434

This paper can be brought/linked to interventional radiologists and vascular surgeons. CCSVI lesions are classified as a truncular venous malformations - which means that vascular doctors have now classified this disease, CCSVI, as congenital- and preceding MS lesions.

Vascular doctors have agreed. CCSVI comes first.

Dr. Zamboni has been speaking to medical panels around the world. Yesterday was a "4 hour machine gunning of questions" by the Italian, Canadian and US MS Societies in Milan- Dr. Zamboni said he was able to answer all the questions with scientific evidence, and was quite pleased with the meeting's outcome. He'll be in North American soon.