Welcome! This blog contains research & information on lifestyle, nutrition and health for those with MS, as well as continuing information on the understanding of CCSVI and cerebral hypoperfusion. This blog is informative only--all medical decisions should be discussed with your own physicians.

The posts are searchable---simply type in your topic of interest in the search box at the top left.

Almost all of MS research is initiated and funded by pharmaceutical companies. This maintains the EAE mouse model and the immune paradigm of MS, and continues the 20 billion dollar a year MS treatment industry. But as we learn more about slowed blood flow, gray matter atrophy, and environmental links to MS progression and disability--all things the current drugs do not address--we're discovering more about how to help those with MS.

To learn how this journey began, read my first post from August, 2009. Be well! Joan

Tuesday, April 13, 2010


Cognitive Dissonance and CCSVI

April 13, 2010 at 9:06am

My dear friend Marie, who has SPMS and was the second person treated at Stanford, taught me a very important concept when we started this journey together. "Joan, CCSVI will be tough for the neurologists to accept. They will have cognitive dissonance."

As a musician, dissonance is something I know about. Hit two adjacent notes on the piano, and you get a dissonance. They "rub" each other. Move your fingers apart, to play a major third, and the ear is happier. You get consonance, resolution, or harmony.

Cognitive dissonance is when two opposing ideas rub in your brain at the same time.  Examples-
I'm really hungry and want to eat --but I need to lose weight.
I know speeding is illegal and unsafe--but I need to get to work now!
The brain needs one of these ideas to win over the other, since they cannot both exist.

Having a teenager in our house makes us deal with cognitive dissonance everyday-
"Mom, I know you tell me God is a loving creator, but why does He allow so much pain and suffering? What about Haiti??? Does God will that?

Because Jeff and I are Christian, we point our son to the New Testament, where we learn that Jesus came, not as a wealthy and powerful king, but as a poor, suffering servant. He teaches us to take care of others first, before pursuing our personal happiness, and that pain is a natural part of life, but it is never in vain. If we were Jewish, we would point him to the Torah, and teach him that life is full of suffering, but we respond by caring for others, following the law, and worshipping our Creator. If we were Buddhist, we'd teach him about detachment from earthly cares and the path to enlightenment. Muslim-we would point to the Qur'an and how the Prophet came to teach us to care for others and worship Allah. If we were atheists, we'd agree with him; how could a loving God let so many people suffer? Religion (or the lack of) can often provide a solution to the cognitive dissonance of life. So can philosophy, so can therapy, so can nature.

I mention religion, because right now in Toronto, a medical establishment has gathered to profess their group "credo." They believe in the theory proposed in the 1940s by Dr. Rivers: that MS is an autoimmune disease best modeled in mice by EAE. All of the medications and therapies they offer are based on this credo. All of the lectures they attend, all of the textbooks and research written, all of the speakers, and all of the fine meals are financed by this credo.

And now here come a bunch of outsiders asking that they open up their minds to another viewpoint. MS could be caused by a malformation in the venous system--as evidenced by reflux of blood and stenosis in most MS patients. Cognitive dissonance is the result. How can their theory stand up to a completely new model? These two thoughts cannot co-exist in the mind, so one must be annihiliated. Guess which one they are going to kill?
In the beginning of all of this, I had hoped that the neurologists would be thrilled to investigate a new model of MS...afterall, they are healers, and surely they want to look into any theories of the potential causation of MS, right? But in talking with Dr. Schelling, I learned from history. Nothing has really changed in thirty years, except everything has changed.

We now have each other thru the internet, and the potential to take this research (which is compounding evidence daily) to vascular doctors and interventional radiologists. They do not have any conflicting views, no cognitive dissonance for them. They are willing to test this new theory, because it makes sense to them. They see how neurovascular diseases work everyday. They understand the importance of venous return. We have consonance. Harmony.

I've included a recording to listen to....I love ancient music, because the idea of dissonance transforming into harmony is so beautifully illustrated in this era. Gesualdo was considered "crazy" in his time, because of the dissonances he used in his compositions. Listen to how the rough, unexpected notes, rubbing against each other, give way to consonance and resolution.

Remember cognitive dissonance when you try to explain CCSVI to your neurologist. Feel compassion for them.  This is going to be a very difficult concept to consider. Try to find a doctor who understands what you are looking for. If your neurologist is open minded enough to accept the rub of dissonance--you are a lucky individual!
Joan

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