Welcome! This blog contains research & information on lifestyle, nutrition and health for those with MS, as well as continuing information on the understanding of the endothelium and heart-brain connection. This blog is informative only--all medical decisions should be discussed with your own physicians.

The posts are searchable---simply type in your topic of interest in the search box at the top left.

Almost all of MS research is initiated and funded by pharmaceutical companies. This maintains the EAE mouse model and the auto-immune paradigm of MS, and continues the 20 billion dollar a year MS treatment industry. But as we learn more about slowed blood flow, gray matter atrophy, and environmental links to MS progression and disability--all things the current drugs do not address--we're discovering more about how to help those with MS.

To learn how this journey began, read my first post from August, 2009. Be well! Joan

Saturday, September 13, 2014

ECTRIMS 2014--$20 Billion reasons

If you ever want to understand why there is no research into the cause, or "disease etiology" of MS, all you need to know is contained in this story from the business news in Boston.

The are $20 billion reasons why research has abandoned ship.


More than 8,000 people are expected to attend MSBoston2014, opening Wednesday at the John Hynes Convention Center. The event, considered the premier international MS gathering this year, is hosted jointly by the American and European Committees for Treatment and Research in Multiple Sclerosis, which alternate meetings between Europe and North America (ECTRIMS)

“Things have gotten dramatically better,” said Lori Espino, president of the Greater New England Chapter of the National Multiple Sclerosis Society. “There are so many options out there for patients, and they slow the progression of the disease. It’s all about creating hope for people.”


Worldwide sales of MS drugs totaled more than $16 billion last year and are projected to top $20 billion within the next two to three years, with MS pills accounting for about half of the sales, said Eric Schmidt, biotech analyst at investment bank Cowen & Co. in New York.
“MS is one of our core areas,” said EMD Serono’s chief medical officer Thorsten Eickenhorst. “We have research activities ongoing and products in our clinical pipeline.”

Dear ECTRIMS participants----

Many of us have already abandoned the Good Ship Lollypop (sponsored by Biogen!), and have decided to find our own answers, outside of the theory of EAE/autoimmunity which has never been proven. According to independent university and governmental agency research--your treatments may modulate immune response, but they don't stop MS disease progression. 
http://effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-and-reports/?productid=1833&pageaction=displayproduct
 http://www.sciencedaily.com/releases/2012/07/120717162736.htm  

Here is neurologist Dr. George Ebers discussing long term outcomes with MS medications.  None of the drugs are proven to alter progression.  He would say that you are not telling the truth to people with MS.
https://www.youtube.com/watch?v=OqY-_K1fYJY

That is why we are charting our own course.  We are looking at the evidence given to us by stroke, vascular and imaging experts, like members of the ISNVD--those who are finding connections to cerebral blood flow, perfusion, gray matter atrophy, and neuronal loss.  
http://www.isnvd.org
We are listening to doctors who actually have MS--like Dr. Terry Wahls and Dr. George Jelinek--groups who are funding real research and have found solutions in nutrition, lifestyle modification, exercise and UV therapy.  We are finding relief in dealing with slowed venous return; through venoplasty, chiropractic care and endothelial health.
http://ccsviinms.blogspot.com/2014/04/unproven-treatments-for-ms.html
You can have the high seas of "anxious hope" and 20 billion dollar sales----we prefer to walk, with our feet firmly planted in reality.  We're hoping to find others to join us.
Joan



6 comments:

  1. Thakyou for sharing this one Joan

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  2. ERA ORA , TEMPO, CHE SI CAMBIASSE, COMPLETAMENTE ....ROTTA DIREZIONE !! L'organismo non è MAI Autolesionista MA, nel tempo , può solamente soccombere alla tossicità malattia, MENTRE , l'uomo autolesionista, per sua presunzione ignoranza BU$IN€$$, oggi lo è sempre più frequentemente , per sua mente sempre più masturbata dal dio Mon€t , fino al suo ultimo respiro rantoloso clessidra tempo !!

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  3. I am just so sick over these obvious deceivers and people refuse to pay attention ... Thank you Joan for this explanation. You keep it simple to understand. Yet, people are so brainwashed they just refuse to accept the obvious.
    Once again, Thank You Joan. Sharing this :)

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    Replies
    1. Shirley--it's easy to exploit the fear of patients who have MS. This article only drove that point home to me this morning. There is very real fear of disease progression and loss of mobility and cognitive function. I saw how this fear was being used by a neurologist to sell Tysabri to my husband---even after his disease had stabilized. And this fear has created a $20 billion dollar industry---even though researchers are no longer looking for disease causation. The only thing that can dispel fear is the light of real research and the sharing of this information. Thanks for all you do to shine your light and help others. xo

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  4. I will be in Denmark, Russia, Malta, USA , Egypt, Tunisia and many more countrys in the next few months to speak up for us all with MS. I WILL DO IT because I care and expose all these bad people

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  5. https://www.facebook.com/pages/ACTRIMS/347088402020345?fref=nf

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